TableĀ 1

Identifying aspects of patient experience and search terms

Relational aspectsFunctional aspects
Emotional and psychological support, relieving fear and anxiety, treated with respect, kindness, dignity, compassion, understandingEffective treatment delivered by trusted professionals
Participation of patient in decisions and respect and understanding for beliefs, values, concerns, preferences and their understanding of their conditionTimely, tailored and expert management of physical symptoms
Involvement of, and support for family and carers in decisionsAttention to physical support needs and environmental needs (eg, clean, safe, comfortable environment)
Clear, comprehensible information and communication tailored to patient needs to support informed decisions (awareness of available options, risks and benefits of treatments) and enable self-careCoordination and continuity of care; smooth transitions from one setting to another
Transparency, honesty, disclosure when something goes wrong